My Macular and Me
Twice a month, delve into the world of macular disease with the Macular Society. Join us as we hear from eye care professionals, providing expert insight on the latest developments in research and evolving treatments. Listen as we also share first-hand stories and explore the support available for those living with sight loss. Episodes are released on the first and third Thursday of each month. For more information and additional support visit: https://www.macularsociety.org/
Episodes
36 episodes since 2023
Bitesize Benefits: Working with sight loss
In this episode of Bitesize Benefits Emma and Colin are joined by Zsuzsi Szabo, Employment Manager at Support4Sight Essex, as they explore the world of employment for those living with sight loss. Listen as they discuss disclosing sight loss to...
September 04, 2024
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Episode 36
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49:13
Bitesize Benefits: Job hunting with sight loss
In this episode of Bitesize Benefits Emma and Colin are joined by Zsuzsi Szabo, Employment Manager at Support4Sight Essex, as they explore the world of employment for those living with sight loss. Listen as we share our key tips job searching, ...
August 14, 2024
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Episode 35
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42:27
Potential treatments for Doyne honeycomb retinal dystrophy
In this episode of the My Macular and Me podcast we are joined by Professor Jacqueline van der Spuy from the UCL Institute of Ophthalmology. She discusses the development of treatments for Doyne honeycomb retinal dystrophy, an inherited juvenil...
July 31, 2024
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Episode 34
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35:17
How smart devices can help you with sight loss
In this episode of the My Macular and Me podcast, we are joined by Hannah Keegan, programmes manager at the Macular Society, and Connect by Tech volunteer Sheila Harris. Join us as we explore the world of smart devices and find out how technolo...
July 17, 2024
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Episode 33
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31:47
The gene editing research seeking a Stargardt treatment
In this episode of the My Macular and Me podcast, Elena Piotter, a PhD student at the University of Oxford, discusses her research project into a gene editing technique called CRISPR and how it could lead to a treatment for Stargardt disease. H...
July 03, 2024
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Episode 32
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35:52
What is an ECLO and how can they support you?
For this My Macular and Me podcast we are joined by Ruth Rhydderch, an ECLO at the University Hospital of Wales. She joined us to discuss her role has an ECLO and she shares her top pieces of advice. Eye clinic liaison officers (ECLOs) offer ad...
June 19, 2024
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Episode 31
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39:22
What is X linked retinoschisis?
For this My Macular and Me podcast, we welcome Professor Andrew Lotery from the University of Southampton. He explores the rare macular condition called X linked retinoschisis. The condition is one of a number of inherited retinal diseases the ...
June 05, 2024
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Episode 30
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25:22
Latest updates in myopic macular degeneration
Dr Annegret Dahlmann-Noor, who is director of the children's service at Moorfields Eye Hospital, joins our My Macular and Me podcast to talk about myopic macular degeneration (MMD). As well as the condition itself, Dr Dahlmann-Noor will d...
May 15, 2024
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Episode 29
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53:08
Bitesize Benefits: Attendance Allowance application and decision
Living with sight loss may entitle you to extra financial support to help with day-to-day costs, but do you know what you can claim? Our mini series Bitesize Benefits will cover a range of topics related to financial and workplace support for t...
May 01, 2024
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Episode 28
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28:04
Bitesize Benefits: What is Attendance Allowance and how do I apply?
Living with sight loss may entitle you to extra financial support to help with day-to-day costs, but do you know what you can claim? Our mini series Bitesize Benefits will cover a range of topics related to financial and workplace support for t...
April 17, 2024
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Episode 27
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42:54
Trains, planes and automobiles
For most, taking public transport is done without much thought or stress. But, sight loss can have a huge impact on the relative ease with which most people travel. For this My Macular and Me podcast we are joined by Pete Lock, national habilit...
April 03, 2024
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Episode 26
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44:31
Bitesize Benefits: Spring Budget
Living with sight loss may entitle you to extra financial support to help with day-to-day costs, but do you know what you can claim? Our new mini series Bitesize Benefits will cover a range of topics related to financial and workplace support f...
March 20, 2024
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Episode 25
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31:05
Understanding gene mutations in childhood eye disease
Researcher Roly Megaw, a clinical lecturer and honorary consultant ophthalmologist from the University of Edinburgh and West Lothian joins us for this episode of the podcast.Roly will be shedding light on the devastating impact of RPGR ...
March 06, 2024
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Episode 24
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39:14
Bitesize Benefits: PIP assessment and decision
Join us for our final episode on Personal Independence Payment (PIP) in our Bitesize Benefits series. In this episode we explore the final stages of the application, unravelling the assessment process and possible outcomes. This episode...
February 14, 2024
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Episode 23
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33:45
Bitesize Benefits: The ins and outs of a PIP application
Join us for the second episode in our Bitesize Benefits series as we continue our exploration of Personal Independence Payment (PIP). We take a look at the application process and uncover valuable tips to help you with your claim. This ...
January 31, 2024
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Episode 22
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37:52
Bitesize Benefits: What is PIP and how do I apply?
Living with sight loss may entitle you to extra financial support to help with day-to-day costs, but do you know what you can claim? Our new mini series Bitesize Benefits will cover a range of topics related to financial and workplace support f...
January 17, 2024
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Episode 21
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24:01
What causes photopsia and photophobia in patients with Stargardt?
Flashing lights in vision (photopsia) or discomfort due to bright light or glare (photophobia) is often experienced by patients with Stargardt. However, little is understood about what causes these symptoms, their prevalence or the impact they ...
January 03, 2024
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Episode 20
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44:51
When and why are lasers used to treat patients with retinal conditions?
Dr Liam Sullivan, consultant ophthalmologist at Cambridge University Hospital, joins My Macular and Me to discuss lasers as treatment for patients with retinal conditions, such as diabetic retinopathy and retinal vein occlusion. The Mac...
December 20, 2023
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Episode 19
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47:54
Latest advances in genomics for inherited retinal disease
Gavin Arno, senior scientist and researcher from the department of genetics at Moorfields Eye hospital joins us for this episode of the My Macular and Me podcast.Gavin joins us to discuss the latest advances in genomics for inherited re...
December 06, 2023
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Episode 18
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42:14
How can job seekers with macular disease overcome barriers to employment?
For this episode of the My Macular and Me podcast, we are joined Zsuzsi Szabo, an employment manager from Support4Sight in Essex, and Gary Hawkins from Cadent Gas, along with Lee Mercer, who is living with sight loss and is sharing his experien...
November 15, 2023
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Episode 17
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49:15
The emotional support available for those living with macular disease
Suzanne Roberts from the Macular Society Counselling service joins Colin Daniels for this episode of the My Macular and Me podcast. We are also joined by Lesley who was diagnosed with macular disease and began using our counselling service when...
November 01, 2023
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Episode 16
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45:05
ECLOs and registering as sight impaired
For this episode of the My Macular and Me podcast we are joined an Eye Care Liaison Officer (ECLO). and a rehabilitation officer as they discuss their roles in supporting people with sight loss.The Macular Society has been supporting pe...
October 18, 2023
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Episode 15
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16:04
New laser treatment for diabetic macular oedema (DMO)
For this My Macular and Me podcast we were joined by professor of ophthalmology, Noemi Lois, from Queen's University Belfast. She looks at the results of a recent trial for patients with diabetic macular oedema (DMO).The trial set out t...
October 04, 2023
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Episode 14
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45:58
What is sorsby fundus dystrophy?
Professor Andrew Lotery from the University of Southampton joins this episode of the My Macular and Me podcast to talk to us about sorsby fundus dystrophy. For further information on sorsby fundus dystrophy please visit our website:
September 20, 2023
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Episode 13
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36:54
BrightPage: a tool to help you read with macular disease
Howard Moshtael, joins us for this episode of the My Macular and Me podcast to discuss his reading tool, BrightPage. Whilst doing his PhD at Edinburgh University, Howard learnt that reading with central vision loss is easier if you don’...
September 06, 2023
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Episode 12
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33:03